When my mother’s ALS progressed to the point where she could barely breathe and she went into hospice, she was terrified that she would die by suffocation. I personally can’t imagine a much more terrible end myself. We called in the doctor and social worker and they explained that if mom wanted them to, they could give her enough drugs to keep her comfortable, and explained what would happen, why it would happen and what she would feel (or not feel) as it happened.
After that conversation she was much more at ease, and was able to focus on spending her last couple of weeks seeing her friends and family instead of shivering in terror 24 hours a day.
That’s kind of like the end of life counseling so many people are slamming. The idea that these visits could be paid for, allowing more people to have access to them, to understand what was happening with their bodies and how to prepare, the idea that this is somehow terrible is baffling to me.
Aug 19th by Tribal Dancer Continue Reading



